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Old 06-12-2019, 12:42 PM   #1
Schmalenberger
 
Location: St. Paul, MN
Posts: n/a
Default Wanted: Musicians who have had Breast Cancer www.musiciansurvivor.org

Sarah Schmalenberger, hornist and musicologist (Member, Local 30-73) is launching a national study to examine the physical and occupational well-being of women musicians who have had breast cancer. The study has been designed to develop a profile of how the diagnosis and treatment of the disease affect women musicians. In addition to the emotional impact of being diagnosed with breast cancer, the physical problems that follow recovery from breast cancer treatment can be particularly burdensome to patients who are musicians, because of their physically demanding occupations or avocations. However, scientific research on the number of women musicians diagnosed with breast cancer and the medical and occupational well-being of musicians after breast cancer is essentially nonexistent.
Schmalenberger, herself a survivor of breast cancer who has struggled with chronic pain from multiple surgeries, has assembled an investigative team of researchers to conduct this study, beginning in September with a web-based survey that musicians who have had breast cancer can take online. Toward that end, she invites all musicians who have had breast cancer to enroll in the study, and she invites anyone who knows such a "survivor" to encourage them to enroll in the study. Anonymity will be guaranteed, and no names will be recorded. Schmalenberger anticipates that the findings from this study will provide a solid basis for further examination of the impact of breast cancer not only on musicians, but also on those in other fields where physical fitness, strength, and stamina are vital to occupational and general well-being.
For more information, you may contact Sarah at scschmalenbe@stthomas.edu

Last edited by ecassano : 09-04-2019 at 12:19 PM.
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Old 07-26-2007, 09:59 PM   #2
Schmalenberger
 
Location: St. Paul, MN
Posts: n/a
Default www.musiciansurvivor.org

The website address for the cancer study - http://www.musiciansurvivor.org is still under construction, but it will include an online survey for participants to take.
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Old 09-03-2019, 10:33 AM   #3
Schmalenberger
 
Location: St. Paul, MN
Posts: n/a
Default Musician Survivor Site Operational!

http://www.musiciansurvivor.org is now accessible! The site contains a link to a survey that women musicians who have been treated for breast cancer can take online. It takes between 10-20 minutes to complete, depending on whether you add optional comments.
Although the primary data collected will be for women treated within 1-5 years with no recurrance, we welcome contributions from those who fall outside these criteria. The survey begins with initial questions to determine full eligibility to participate; those who are not eligible will be "jumped" to the survey end where they can write about their experience with breast cancer in the essay box. These stories will help us with later phases of the study, in designing interview questions and hypotheses for additional inquiry.
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Old 10-14-2007, 01:18 PM   #4
Schmalenberger
 
Location: St. Paul, MN
Posts: n/a
Thumbs up hearing from musician survivors

Six weeks now since www.musiciansurvivor went online...and 120 musician survivors of breast cancer have logged on to the online survey to contribute to the Life and Livelihood Study. Several have contacted me to share additional details of their experience with breast cancer. All may contribute to the study in some capacity, whether to write a brief narrative about their experience or whether to take the full survey that polls those whose primary treatment (e.g., surgery, reconstruction, chemo, radiation) ended between 1-5 years. We need 200 in this "full survey" group to complete this first step, or Phase One. Of the 120 who have contributed, 40 completed the full survey and 30 completed the brief narrative. THANK YOU SO MUCH FOR YOUR CONTRIBUTIONS!
Phase Two of the study will consist of about 30 telephone interviews with those who volunteered after taking the full survey to be interviewed. We hope to start these in January. The online survey will stay active though, possibly through Sept. 2008.
During this startup phase I have learned of survivors in Phoenix, Chicago, and New York state who have organized ensembles and concerts to both bond together as survivors making music and to raise funds. I can only hope that these groups reflect our music community overall, that there are other music survivor groups!
Wishing you all good health and happiness as musicians. And please keep telling others about the study!
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Old 11-03-2019, 11:33 PM   #5
Schmalenberger
 
Location: St. Paul, MN
Posts: n/a
Smile survey faq

I have had emails from people about who can participate in the breast cancer study online at musiciansurvivor.org. The survey is set up to allow survivors who completed treatment (surgeries, chemo, radiation, reconstruction, etc) within 1-5 years with no recurrence to take the full survey. Don't count taking Tamoxifen or Arimidex/Femara as treatment. Those who do not qualify to take the full survey (including men) can still contribute by sharing their story of how breast cancer affected their music career - the survey will simply jump to this question. We are also interested in hearing from anyone whose music career ended due to breast cancer. THANKS to Polyphonic for posting these announcements, it has brought many people to the study site!
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